In my ever-more-inked-up appointment book, you now find the jotting "PT."
I
will have ongoing physical therapy for my right arm and shoulder.
Because of the surgery, the removal of lymph nodes and the
reconstruction, my upper body is about as stiff as I figured I'd be at
90. I often continue to feel a deep ache that stretches from my chest
wall into my very center. Nerves and muscles were altered or cut by the
surgeon's scalpel and my innards, as we hicks say, have been disrupted.
To add insult to this injury, I now have a bona fide Jiggly
Grandma Upper Arm. (Let me quickly add only one of them--the right
arm--has gone all old lady on me.)
The good news is that with some focused attention, it should all go back like it used to be.
Essentially, it won't be any worse than it ever was.
So that I
will continue to be able to lift my clean dishes out of the dishwasher
and onto the top shelf of the cupboard, I now do a series of exercises
several times a day and will have multiple sessions with a physical
therapist.
Before my first PT appointment, I filled out the several pages of a
health questionairre. One query asked, "What is your goal in coming
here?"
And then I wrote something that would have been a typo if I would have
been typing. (Er, excuse me. Don't want a Grandma vocabulary to go with
that arm. I should have said...not 'typing'...but 'keyboarding.'
(BTW--how come today's typos aren't called keyboardos?)
(Sorry for the digression.)
(And all the parentheses.)
Back to the my goal for physical therapy.
I meant to write that my goal was "Mobility."
Instead I wrote that my goal was "Nobility."
And as I smiled ruefully to myself and scratched out a correction, my
mind seized onto that word...nobility...and I immediately thought of my
Grandma Shock.
(Yep, that was her real name. My mother's maiden name was Shock.)
(Are parentheses on sale or something?)
Now
I'm going to digress about my grandmother for a bit, so here is an
illustration to break up the text and make the blog somewhat visually
stimulating and also to provide you a mental picture of her.
This
is a photograph of me (circa 1989) with my beloved grandmothers. This
is the back porch of the house I grew up in in Jackson, Ohio, where my
parents still live.
From
left to right: Dorothy Shock, my maternal grandmother. Jill Burger, my
mother. Auguste Burger, my paternal grandmother. And that's me with the
five-footer when she was a two-footer. (She had just gotten up and I
can almost smell that hot-baby-post-nap scent in that sweet fold in her
neck!)
(In most pictures of me that were taken in this era, I
sport a heinous perm and wear black acid washed jeans. No kidding. And
the saddest part is, I thought it looked bitchin!)
I come from
good peasant stock as perhaps the faces in this picture reveal. On both
sides I am descended from a hard working, plain speaking, decent lot.
We have no airs or pedigrees or strings of numbers behind our
names...and we admit to a bit of suspicion of those who do.
That said, I now know that I am descended from nobility. Yeah, me, the
gym teacher's daughter from the sticks: I am of noble birth.
At the time this picture was taken, my Grandma Shock was a 26 year breast cancer survivor.
She was diagnosed in 1963. She once told me that when she found the lump, my own grandfather told her to ignore it.
She did not. She was not the Ignore It type.
In 1963, there were no pink ribbons, no races, no support groups. No
special cancer clinics, no reconstruction surgery, no hopeful clinical
trials. Women were called 'victims' not 'survivors.' Furthermore, The
words "breast" or "cancer" were seldom spoken aloud and never in
tandem. Well bred people and newspaper obituaries didn't even mention
cancer when it was the cause of death;
it was termed "a long illness."
Grandma
Shock's surgery was what they called a radical mastectomy. From
practically under her chin to her waist, from her sternum to her bicep,
every corpuscle the scalpel could find was cut away. They took the
tissue under her arm as well, including all of her lymph nodes.
That was followed by an intensive course of radiation.
Go back and look at the picture. Notice Grandma Shock's right hand.
She
could wear the prosthesis in her bra and conceal her poor scarred
chest, but she could not hide the ravages of the side effects of her
disease. Because she had no lymph nodes, she lived with constant
lymphedema. Her right hand and arm were always swollen. That word
hardly describes it--her arm was bigger and heavier than her thigh. If
she got a cold, it would be throb with fever. It was uncomfortable
every day.
And embarrassing. I have very few pictures where you can see the
swelling. She was quick to turn her body so that the offending arm was
hidden or tucked behind her back.
Yet she was always fashion
conscious and was proud to be a little bit vain. She had a difficult
time finding clothes--long sleeves were often too tight to contain her
arm and short sleeves revealed the unsightly condition. "Oh, this arm!"
she would say in exasperation during a fruitless shopping expedition.
That was about as much complaining as I ever heard from her.
I
wish I had more details of exactly what she experienced with her breast
cancer. She wasn't afraid to talk about it, but she never brought it
up. It was simply part of her life. I never heard her feel sorry for
herself; she always seemed so grateful that she lived despite losing
her breast. I think she found it a hard bargain but a fair trade.
I now contemplate the fear that must have been her daily companion. She
had no chemotherapy to lengthen her odds for a long life, no regular
scans to scout for a recurrence, not even a mammogram to provide proof
that her other breast was not a time bomb. For a whole generation of
breast cancer survivors, the high tech imaging tht we take for granted
was the stuff of sci-fi, about as realistic as a robot maid.
Instead of medical reassurance, she had faith and grit. And she
cultivated the ability to seek and find joy in the day...in a
snapdragon, an excellent canasta hand, a visit with family.
My
grandmother was a housewife feminist, who had a charter subscription to
Ms. magazine. We had a summer--I think it was the year I was 9--where
we played miniature golf every time we were together. She loved James
Bond movies and gardening and the daily crossword puzzle in the
newspaper.
She was not the Salty Old Dame kind of Grandma, the
sort who would flip the falsie around like a Frisbee. With her
well-modulated voice and shy smile, she had a kind of elegance, a
dignity. She was instinctively what few women aspire to be today: she
was a lady.
We were not much alike, but we were deeply devoted to
one another. I have felt so close to her in the past few weeks. Her
spirit hovers near me and frequently comforts me.
I was so lucky
to be her grandchild. So lucky to still have her alive and vital in my
memory bank. She lived 35 years after her diagnosis and mastectomy
surgery. She did the crossword puzzle on the morning of the day she
died, at age 93. It was not cancer that claimed her.
How I wish I
had asked more direct questions about her experience. How did she bear
it? How did she come to peace with it? How did she not become bitter or
fearful or neurotic?
How did she remain so noble?
Honestly, I would give anything I own...everything I own...for fifteen
minutes in her presence, to hold her dear inflated hand and have a
woman-to-woman conversation with her.
But this is all impractical yearning and neither of us, my Grandma Shock and I, are impractical women.
If
I pause, comb my memory and really think about it, I know that even if
I don't have the answers to my specific questions, she showed me what I
need to know.
How I need to be.
I have her brave example. If she could face it in the unsympathetic early 60's, then I can certainly do it now.
She endured. I am of her line. I will too.
And
here's one more photograph (circa 1990) to again break up the text.
This time I have the six footer and the five footer with me. And,
sadly, there is photographic evidence of my grave fashion errors of the
previous decade. Why in the world am I smiling??
For
those of you not going to Prince tomorrow night at the Target Center,
ZibraZibra is playing right across the street at First Avenue with
HarMar Superstar and Seymore Saves The World.
This is an album release show, but not the kind that comes on disc,
tape, or wax. The album, titled 777, is being released digitally, so if
you go to the show don't forget to bring an ipod, computer, robot or
spaceship to take the record home on.
Doors open at 6:00 PM and
the price is only 12 bucks (a pretty sweet deal, especially if you're
planning on staying for the Prince afterparty and you hate breast
cancer)
Yes that's right, this show is also a breast cancer benefit.
For more information check out ZibraZibra at myspace.com/zibrazibra or www.first-avenue.com
Next week, my youngest...the four-footer...the Spunkiest
Nine-Year-Old in the Seven If Not The Twelve County Metro Area...will
go to church camp for the first time. Sleepaway Camp. In the woods--far
away!
She's tingling with excitement and anticipation about this
adventure. Her older siblings found church camp to be among their
happiest and most memorable experiences and she's ready to be chime in
with her Me-Too on this.
But I don't think she quite comprehends what church camp is.
From
all that The Bigs have said over the years, she understands that it's
Fun, of course. That there are songs and cool counselors and sleeping
bags. That it smells like pine needles and bug spray and that
melty-Hershey-bar
S'more/campfire scent.
She also has heard that there's God stuff, but it's not boring.
When
you ask her about what she's thinking about going to camp, she locks
onto one particular detail like she's a thirsty wood tick.
There's a bathroom on the bus!
It's a long ride to the North Shore and my little camper and her
co-campers will ride in style. The church contracts with a commercial
bus company to provide transportation. And, wisely, considering they
are hauling dozens of child-sized bladders, they use a bus that has A
Facility in the back.
Hey! A bathroom on the bus! Wow, right!?!
Basically, the four footer can't quite imagine or visualize what's at
the end of the bus trip. That's all as hazy as the morning mist hanging
over the lake. Will she make friends? Will she be homesick? Will there
be bears, as she has heard rumored?
Not sure about that.
But, as I think I mentioned, there's a bathroom on the bus!
As
I continue my own journey, I think about the parallels between what my
little girl is about to experience and what's directly ahead for me.
I begin chemotherapy next Thursday, July 12th. I admit that I feel a
corrosive, gut-eating fear about this. I read the pamphlets about the
drugs and the chemo accounts in books and I hear about the experience
from others who have gone through it. But even as I am counting down to
it, it seems unreal. A part of me still can't believe that there isn't
some way out of this. That there isn't someone else I could pay to do
this for me.
Yeah, it's irrational.
Sometimes I even think that maybe I shouldn't do it. That it just doesn't make sense to poison myself in order to be cured.
But
then my intellect trumps my fear and I remind myself of just how lucky
I am to have the doctors, pharmacology and science to treat and defeat
this disease.
I remind myself that I can do this. I must. I
will. And I'll appreciate every blessed drop, for the chemo drugs will
ultimately allow me to live the long life that I so desire. It will
allow me to claim a future that is cancer-free.
Still, I have to
work hard not to get hung up on the symptoms that may follow the
administration of the chemotherapy. We've all heard the horror stories;
some of you reading this may have experienced them or watched a love
one suffer. Miserable nausea, often followed by weight gain because of
the steroid anti-nausea medication. Hair loss, which I am assured of.
Fatigue--a level of cosmic exhaustion that cannot be anticipated. Aches
and pains. So-called 'chemo brain' which drops a fog over cognitive
thinking and memory.
My doctor and others who have done what I
am about to do assure me that, these days, chemotherapy can be well
managed. People known to be truthful tell me that the misery is far,
far less than what patients experienced in even the recent past. That,
while it's no one's idea of Fun, it can all be tolerated.
All I can think about right now, though, is the bathroom on the bus.
I
can't think about what will happen when I get to my destination--which
is the other side of the chemotherapy. I don't know exactly what
happens then. I am preoccupied with the first, next leg of my journey.
For
my daughter, it's the focus on the novelty of the bus biffy. Me, I
think about sitting in a room with an IV drip. I am focused on how I
will fare, because everyone reacts to the chemo cocktail differently,
depending on their own unique body chemistry.
I truly wish that
my first chemo session was behind me. It will be a relief to know
exactly what the experience will be and to have faced it. For me, it
seems the unknown is the bear in the forest.
"The first chemo
tells the tale," the kind-eyed nurse reassured me just this morning.
"Once it's done, we'll know how you react. We'll see how you do and
tinker with what you'll need to take care of you and make you feel
good." She smiled sympathetically. "Everybody talks about the people
who react badly. You don't hear nearly as much about the vast majority
of patients, who do just fine."
I will be among that number, I'm
sure. I will do just fine. I spend a fair amount of time these days,
calming my restless mind and staying upbeat--or, when I can't do that,
keeping my spirit in neutral. I want to be tough, not a complainer or a
whiner. I want to accept this and not fight it.
I want to use
the damn bathroom on the damn bus and get on with the journey so I can
experience what church camp will be like. That's what I really want.
* * * * * * * * *
I
have not written much in the past week. I have had a number of medical
appointments--physical therapy for my arm, body scans, blood work.
Between running around, working, and focusing on gathering my internal
strength, I have made less time to ruminate on the blog.
I hope
this will be a space where I can continue to process what I'm
experiencing with those of you who are interested in hearing about it.
The
radio show will continue to be a place where I go to get away from some
of This. On my first show back after surgery, I promised you that I
would not turn The Kevyn Burger Show into The Cancer Show. I want to
talk, laugh, and get snarky like always. I need it--and need you to
help me have fun!
For those of you who would like to hear a more
personal, me-focused take on my experience, I offer the written word on
the blog. The blog is meant to be an alternative way for me to interact
with FM107 listeners. If what I write here is of little interest to
you, I hope you will simply bypass the blog and will continue to listen
to the show from 9 to 11 Monday through Friday. I hope to still be
behind the microphone most days.
I do not want to become the
face of breast cancer in the Twin Cities. I have become a reluctant
expert on this disease. But, really, who would want to be the face of
this disease? Who would want to become the go-to Survivor Girl?
I
do realize that I am in an extraordinary situation...that, because I
have lived my life on the public airwaves, I am in a unique position to
raise awareness about breast cancer. I could do some good here. I could
and I should.
To be honest, I don't yet know how--and when--I can
use that position. I'll figure that out as I go. Right now, my sole
focus in on healing and staying strong. So stay tuned and know that I'm
pondering what my move will ultimately be.
Thank you from the
bottom of my heart to all of you who have sent your prayers to me and
my family. We feel the power of that wave of good wishes.
I
know that many of you offer a positive thought or blessing in my
direction as you cross the river. I feel it. I feel it. I feel it and I
humbly thank you.
On these summer mornings, I
particularly relish crossing the Mississippi River as I head into the
station. When I'm in the middle of the bridge, suspended over the
water, I make sure that my head swivels from right to left, north to
south, to take in the majestic vision of that storied ribbon of water.
Too
often on my morning commute in the past, I would arrive at the parking
lot at work with no memory of making the drive--I had coasted in on
autopilot.
Right now, I'm working on and learning to be 'more
present' in my every moment...to be less distracted, to appreciate each
task for the pleasure in it, to give up the idea that multi-tasking is
a worthy, efficient accomplishment.
I'm changing. This is good.
I
want to be more alive in my own life, less distracted by the illusion
of busy-ness and productivity. I want to slow down and stop coasting on
autopilot.
I've only been back at work for two days, so I'm
hardly stuck in the old routine. And I really, really want to be back
on the air. The contemplative cocoon I've spun for myself to inhaibt in
the days since surgery has served me well, but at some point, this
extrovert can have too much silence and a good thang could go bad. I
needed very much to return to my familiar post and the work that I love
so much. I needed the stimulation and laughter that I find in the
broadcast booth. I was so content, being back in my chair and on the
air on Monday and Tuesday. I found it comforting that, in the midst of
so much change, my ability to talk on the radio has remained a constant.
But
right now, the only way I can do my work is to work differently. My
post surgery fatigue demands that I show up later, leave earlier, let
the show flow with less preparation. Be more myself, more spontaneous.
Like its host, the program is in transition.
As part of my
determined effort to work less and sleep more, I now leave for the
office at 8:00 am--I used to take off at 6:00. This time switch gets me
into the thick of rush hour traffic for the first time in years.
I
felt particularly cheerful this morning as I walked out my back door,
coffee in hand. I noticed a squirrel scampering on my back fence,
admired the purple petunias spilling out of the clay pots on my patio.
I turned the key, popped the car into reverse and tuned into Ian
without Margery. Ah. Feeling centered and content, I turned out of my
driveway and soon was heading north on 35W.
As I approached the turn from 35 to eastbound 94, I noticed the red brake lights on the car in front of me. I braked.
Fortunately, I was not going too fast, not tailing too closely.
Unfortunately, the car behind me WAS going too fast, WAS tailing too closely.
My
eyes flicked to my rearview mirror. In slow motion, I saw the vehicle
behind me--which I swear looked more imposing than one of those monster
trucks with the two-story-tall wheels--looming large.
I'm about to be rear-ended, I thought. My mind froze around one word. I braced myself and muttered, "Oh, heavens to Betsy!"
(Actually,
I didn't mention heaven or Betsy. I know there are words that
broadcasters who value their jobs do not use on the airwaves. I don't
know if it's dangerous to use those words in a blog that appears on a
broadcast website. I'm not taking any chances...a prudent policy seems
to be: if you can't say it on the air, best not write it on the blog.)
The huge car--which later shrunk to being a cherry red Nissan--hit me. Hard.
I
pulled over to the shoulder of the freeway and cautiously stepped out
of my car. The other driver--a young woman--was mashed behind her
inflated airbag. Her front bumper was in the road, her hood was
crumpled, and I could hear a hissing-gurgling coming from the exposed
engine.
The damage to my car was minor in comparison--a shredded back bumper and dented hatch.
The
Highway Helper came arrived with the orange cones. The other driver got
her car on the shoulder of the road. She squeezed out of her car,
realized she was unharmed and began crying. She was trembling too hard
to write down her insurance information for me. The patrol officer
showed up with his clipboard. The tow truck arrived to haul the other
car away. I was able to drive my car home.
I called Alexis, told her I wouldn't be in to do the show, and headed home.
I've spent the rest of the day seeing doctors.
Checking in with receptionists, filling out medical forms and flipping
through magazines in medical waiting rooms is nothing out of the
ordinary for me these days, but today the appointments were all
'squeezes,' doctors pushing their schedules around to accomodate me.
When
my car was struck, I was thrown hard against my seat belt. I
immediately got a headache and felt a very slight twinge in my shoulder
and lower back. Although I did not have a feeling of dread or true
concern about any of this, I'm totally freaked out about a)my body and
b)my bad luck with my health right now.
I called my primary care physician who recommended that I make immediate appointments with my plastic surgeon and a neurologist.
The
plastic surgeon checked my incisions and my implant. (Still feels
mighty wierd to write that word and know that it applies to moi!) Both
were determined to be intact. Good. The neurologist squeezed my
shoulders, tapped my hands with a silver hammer, passed a cylinder in
front of my face to watch my eyes track it. He, too, pronounced me
fine. Good again!
Call me shaken, not stirred.
All's well that ends well, as my mother says.
But I'm hung up on that instant when I looked in my rear view mirror.
When I knew I was going to be hit--but just didn't know how hard, with
what force and velocity. I didn't know if I would shoot through my
windshield, or if my car would be struck so that it would spin into the
adjacent lane, just as a multi-ton 18-wheeler was bearing down.
There was time for one word to form in my brain, to bubble up from my place of deepest fear. The
word was "Please."
Please let me live.
Yes, I'm exhausted
right now. It's been a day of reading off claim numbers, accident
reports and rushing to doctor's offices. I've talked to several claim
agents at several insuance agencies. I took my car to a repair shop and
learned that it will take four days to repair what looks like a coupla
dents to me.
A busy, tedious, frustrating, exhausting day.
But I'm not bitchin.
My life could have ended today. Right now, I
could be in a hospital with critical injuries. In a brief second, my
future could have been altered forever. Once again.
But it didn't.
I didn't cross the river today. But I'll do it tomorrow.
"Please"
isn't much of a prayer, but it was all I had time for. It was a prayer
that was heard and heeded. For those of you who have been praying for
me--thanks. The spillover from your prayers might have saved me this
morning.
I
woke up in time to catch the whole ten o'clock hour while I ate
breakfast and it felt great to hear her voice pumping through the
kitchen HI-FI again.
Although she's not exactly "back in action" I'm glad Mom has made the choice to do the show as often as she feels able.
Here is a response to this morning's show posted by Mom's long-time friend J.C. Burns.
Here is a link to Andrew Zimern's food and dining blog with a post regarding Mom kicking cancer's butt.
And here is the news in City Pages posted by Mom's friend G.R. Anderson, Jr.
"Last
week's news that Kevyn Burger has breast cancer shocked her friends and
radio listeners alike. Not just because the FM-107 chat-show host
conducted self-exams over the air every month—asking her listeners to
play along at home, work, or in the car—but also because the lady seems
so damn invincible.
She took to the airwaves for one hour
Thursday morning to talk about her illness before undergoing surgery,
reconstruction, and chemo. In typical Burger fashion, she was
stunningly frank, but her wicked sense of humor bubbled up when she
talked about losing her hair and her breasts.
"I got a good
rack," Burger said. "I always felt I got a good shake, literally, in
that department. I love my hair, and I love my breasts, and now I'm
going to lose both."
She wrapped up by vowing to come back, and you can bet that she will."
The river photograph for this post was provided by Missouri photographer Jacob Bruton.